04/04/04 SMA Across America
THANK YOU for all the hard work, for everyone who
participated in 04-04-04! We sold hundreds of t-shirts (and they are
still available for sale today, there is no date on them, so you can
continue to sell/buy them for SMA Awareness!)
We had several fundraisers across the US, some big, some small, but all
important! Pictures coming soon!
A big thank you to Karen Reilly for coordinating
this! It certainly wouldn't have happened without her!
Another thank you to Andrea Smith for designing the
cards that went out for the event as well, front and back pictured here:
Also thank you to Michelle Worellia for coming up
with the design for the t-shirts! Below are pictures of various
people wearing the SMA Across America shirts!
On 04-04-04, we were proud to
be part of an SMA Across America day! What started as a fundraiser
for SMA Support has grown into an event comprised of most of the SMA
Organizations out there united in one common goal, awareness of the
disease that affects us all. 04-04-04 was a day of
fundraising, awareness, and fun!
Each person who did a
fundraiser on 04-04-04 chose the SMA Organization they would like to
have benefit from the day. SMA Support, FightSMA/Andrew's
Buddies, The SMA Foundation, Miracle for Madison & Friends, Payton's Pals,
and Ryan's Hope Foundation all participated in events on
04-04-04! We had the assistance of a lobbyist organization getting media and congress attention for each event planned!
We were thrilled to help
us spread the word about the disease, and unite most of the existing SMA
organizations into one loud voice! We made 04-04-04 a day to
remember in the world of Spinal Muscular Atrophy!