Welcome to SMA Support's Guestbook. It is our hope that you have found the forum you need to discuss all aspects of SMA with those who know it best-the families involved. Please take a few moments to introduce yourself and share your questions, concerns, or news.

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Sheila and Skylar
Thursday, Aug 28, 2008
Happy 4th Birthday Veronica, Happy Birthday to you :) Big Hugs Sheila and Sky
Brad (Father to Shira, SMA Type 1, 3 years old, Giddyup)
Thursday, Aug 28, 2008
Shira's Web Site
Just thought I would throw a photo of Shira on. She loves getting her head all wrapped up.

Happy Birthday Veronica Rose!!
Aunt Karen
Thursday, Aug 28, 2008
Happy, Happy 4th Birthday Veronica Rose. Have a great day celebrating wonderful you. You are my hero. Your spirit, courage, determination and abilities ane incredibly amazing. You fill my heart and soul with so much love. My world is a better place because of you. I have learned so much from you and am a better person because of marvelous you. Debby, as you celebrate this special day with Veronica, remember to celebrate "you" also. You are the reason that she is such a beautiful, awesome person and is doing all the incredibly amazing things she does. Thank you for sharing her with me!
Love and hugs,
Aunt Karen
Wednesday, Aug 27, 2008
Hayden's site
The Boys and their pike. A proud moment. Please check out Hayden's site for a few more pics.
Wednesday, Aug 27, 2008
All of us by the campfire
Tina
Wednesday, Aug 27, 2008
OK, OK, I check in often but haven't posted much lately so I'll take up some of the space sharing our special camp experience.

Here is Ian and Hayden going out on a pontoon boat through the Rideau Canal lock system to our overnight tenting site.
Tina MacIntyre
Wednesday, Aug 27, 2008
Happy belated birthday wishes to two amazing little fighter: Charlie and Veronica. Hope your days were beyond amazing, as I'm sure they were with the wornderful families and love that surround you. All things great for you this coming year. Love from The Mac Pac

Here we are at Easter Seals Family Camp last week. What a special week for all of us.
christy
curesma1@charter.net
Wednesday, Aug 27, 2008
VIVONEX, VIVONEX, VIVONEX
We have 3 cases of vivonex to ship out. please let us know if you could use some vivonex.
Christy
Brad (Father to Shira, SMA Type 1, 3 years old, Giddyup)
Shira's Web Site
Tuesday, Aug 26, 2008
Below is a link to Healthcare professionals from throughout the US and the world that have been trained by the Center For Ventilator Management Alternatives in the use of noninvasive ventilation techniques.

www.theuniversityhospital.com/ventilation/html/contactus/resources.htm
Brad (Father to Shira, SMA Type 1, 3 years old, Giddyup)
asonginthisworld@gmail.com
Tuesday, Aug 26, 2008
Shira's web site
Happy Birthday Veronica!! We are thinking of you and your family. 5 years old is really big! Don't worry about the dentist Sammy went there recently and he did really well, he even had fun. We wish you health, fun and happiness this year. Brad, Maxine, Sammy and Shira!
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