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How Do I Apply?
SMA Support Inc.’s
Grant-making/Program Dispersion Program:
SMA
Support Inc. is dedicated to providing information and
support in any manner needed to any and all families
affected by the genetic disorder Spinal Muscular Atrophy
(SMA). Such
support consists of medical equipment, funeral expenses,
medical supplies, flight costs to required appointments,
communication and educational equipment, equipment to maintain quality of
life, live and internet support, and other forms of
information as well as support not covered by insurance
that such families may need.
Families may apply for
grants/funding by contacting Laura Stants with a
filled-out application by e-mail at
laura@smasupport.com,
or by mail
to:
SMA Support, Inc.
P.O. Box 6301
Kokomo, IN 46904
**Please fill
out this
Application Form after reviewing the rules/policies
below.**
Rules/Policies:
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In
determining applicability for dispersion of funds or
equipment, SMA Support does not discriminate on basis of
age, race, religion or sex.
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The grant program and
equipment pool are open to families world-wide.
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Families
must have had their equipment/services request denied by
insurance prior to applying at SMA Support. We
reserve the right to request a copy of the denial.
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At
this time SMA Support may limit funding
to one
request per family per year.
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Requests
will be evaluated on a first-come, first-serve basis.
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Requests must come
from the family themselves, not through a third
party.
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In
the event of multiple requests at the same time with
limited funds, requests with the highest likelihood of
improving quality or quantity of life in the individual
will come first.
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In most cases, checks
will not be sent to the
family but directly to purchase whatever aid, supplies,
services or equipment that is needed.
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Equipment
that SMA Support purchases remains the property of SMA
Support. Families may use such equipment as long as they
need or want. When equipment is no longer needed, it is
returned to SMA Support to be put in the “equipment pool”
and made available to other families who may be in need of
it in the future. There are exceptions, which can
be discussed on a case-by-case basis.
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Outgrown,
malfunctioning, or unused SMA Support equipment is NOT
to be passed on, sold, offered elsewhere or thrown away;
it is to be returned to SMA Support as soon as possible.
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When applicable and capable, the family for whom
equipment is being purchased should try to cover the
shipping costs of the item.
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SMA
Support does not provide financial support directly to
families for general issues such as household, personal,
or credit card bills. SMA Support’s main focus
is to take care of the critical equipment or services needs of individuals with
SMA which will directly affect their health or quality of
life.
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The amount of allowable
services per family varies per year, depending on what is
available and what has already been requested.
We can
not provide items on the scale of accessible vans at this time. However,
when appropriate, we can help towards said
items.
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Upon submission of their
application, a family can typically expect to wait
less than a week for a response.
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